I couldn’t even pretend that I worked today. I was at Stacy’s all morning. The day started like any other, with blueberry oatmeal, but I had housework I wanted to do. Tuesday I’d had a little diarrhea accident and my hip pads still needed to be washed. I do hate to go without them (what was that on the bicycle yesterday, a boy or girl?) and I wasn’t about to let them sit dirty another day. On the bicycle yesterday, and at right, here, I’m without hip pads. I hate this look, and I’m self conscious of having boy hips. *pout* (Note to self, after looking at this photo: Never wear the large breast forms with without hip pads. Always go with the smaller ones. Gosh that’s a weird shape.) Before laundry, to have space to work in the sink, I had to do dishes. I started on that, Stacy could see that she was of no use and so she went on to bed, leaving me alone. Once started on housework, I also found myself at the limit of the mess I could tolerate in my little space I had claimed in the living room. Clothes and stuff that used to be organized into boxes, sorted, and folded neatly, had grown to an unruly and unsearchable pile. With my energy level so low these days. Housework ended up taking all morning long. My 1:30 appointment with the ENT was approaching and I’d long ago written off getting to the office beforehand. I left Stacy’s with just enough time to pick up my antidepressant prescription from CVS on the way. At CVS, frustration. No, there’s no prescription for you. Two different people searched the computers and baskets of filled prescriptions. Nothing. And nothing else could be done at the moment. I had a doctor’s appointment to make.
The visit with Dr. Kiskaddon, the ENT, was very encouraging. He said I looked great and that it was great to see, just looking at me without instruments, the lumps gone from my neck, and my neck having a natural shape again. He was also amused at how easily I was talking compared to when he had seen me before. I told him all about how well the tracheostomy had gone, how draining the radiation turned out to be, and also about this recent infection. He used the scope to look down my neck then. This was a big moment for me because this was the first time a doctor was getting a before and after look at the tumors with some special instruments. After using the scope on me that first time, two months ago, Dr. Kiskaddon was the first doctor to say to me that I might have cancer, so this was kind of momentous for me, to have him look again, post treatment. Well, concerning the tumors, it turned out he didn’t have much to add to his assessment from just looking at the shape of my neck. The bulk of the tumors was gone. What he had much more to comment on was the state of the infection. He saw edema and inflammation, and it was serious enough that he didn’t want to remove the trach tube today. That’s right, he would have removed it this day otherwise. Well having an infection sucks. It was mildly reassuring to have him take such a close look and say that yes, it looks like an infection, and that therefore it was being treated appropriately. It was hugely exciting though, to hear that there was nothing else holding up removal of the trach tube! He seemed to think a week would be plenty of time to get the infection under control, so I made an appointment for next Thursday. Cross your fingers!
Lunch time. I decided to try the newly opened Market in the Square, a Sarah’s-like place not only in Harvard Square, but on the side of the square closest to Stacy’s. They have a food by the pound buffet and after looking it over, I was pretty sure I could find enough to eat. I got a pile of mashed potatoes, half a hard boiled egg, a little tuna salad, a few pieces of fake crab meat, and some yellow squash and zucchini salad. I pulled a bottle of iced tea out of the cooler and my grip wasn’t enough to hold it. It fell on the tile floor and smashed. An employee was there in a moment telling me not to worry about it. I tried again, this time concentrating on gripping it harder, and got my lunch to the register. Finally, on impulse, I asked for a piece of key lime pie from the dessert case. Again, lunch took a very long time to get down, but I finished it. I started on the key lime pie then, and was devastated that I couldn’t taste it. I thought to myself that it could be a slab of rotten fish and I wouldn’t be able to tell the difference. Then I couldn’t get that thought out of my mind. Rotten fish, rotten fish, rotten fish. I was stuffed anyway, near tears that I couldn’t taste this pie–with only a couple bites of it eaten, I picked it up and dumped it in the trash.
I wandered into the office then sometime between three and four and told Muazzez that I was counting today as a sick day, that I had just come from the doctor and that now I had to talk to another one. I went in my office and called the doctor’s office to find out what could have gone wrong with my prescription. The receptionist verified everything for me, assured me that CVS had the prescription, and gave me the secret words to drop for them. “e-scrip” and “pocket.” Cool. I checked emails and piddled a bit at work, then left to try CVS a second time. Again, they claimed at first that they didn’t have my prescription. I used my secret words, “e-scrip” and “pocket,” then, and one of the pharmacists gave me a serious look and went to a different computer without saying a word. A few minutes later she reported that she had it. “Can you wait ten minutes?” “Sure. I’ll be back in 30 or so” and I left. I left to go check in with Stacy and tell her that I wouldn’t be at dinner. I’d decided to go to Gender Crash this evening. Stacy was in bed, but awake from Jessica bouncing around, so I sat on her bed and talked for a bit as I reassembled my almost dry hip pads and wiggled into them. Ah, I felt like Sonia again. CVS then, third time was the charm, and I had my Prozac. It was a good day.
Thinking I should have food again soon, I got a hotdog from the Ashmont hotdog vendor who is temporarily relocated in the Harvard station. I’ve bought hotdogs and sausages from him a few times and he recognizes me and talks with me. “What do you want on it?” “Nothing. My mouth is sore from radiation treatments and I can’t tolerate anything on it” I explain. “You get salt on it then!” he says, part joking, but part warning me that there is salt on the grill and that the hotdogs are salty. “Ha! salt is all I can taste. This will be perfect.” And it turned out it was a good dinner for me. Pretty easy to eat. Through the gates and walking down the platform, a young girl smiled and waved. She looked vaguely familiar, but at my age and with my social skills, all strangers look vaguely familiar. I walked by her and continued walking to the end of the platform. (Changing at DTX, the end of the train would be closest to the tunnel that leads to the Orange Line. You learn these things.) I sat down on a bench and dug the hotdog out of my purse and took a bite. Seconds later, there was the girl. She had chased me down the length of the platform. “Hi” she said again, “do you remember me from Pride?” I did recognize her then, of course now horribly embarrassed at having walked by her before. It was Kaveri, who I had met riding the train downtown the morning of the Pride Parade. Kaveri is Indian and the kind of social creature that makes friends with everyone she comes into contact with. She was with another girl, Aperna, that day, and the three of us talked the whole way to the Parade, got off at the same stop, and then I ended up running into them later in the day and talking with them more. I’d given Kaveri my email address that day and she’d promised to write, so today I said, “You need to give me your email address..” and without hesitation she said “yes, I do!” So that was fun.
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Red line, Orange line, and I was at Gender Crash before doors were open. I said hi and traded introductions with a couple of others that were waiting, and killed time playing with my camera. The flower picture is nothing much, but I just couldn’t believe that I could take this picture of the moon. This is a hand held photo taken with a point an shoot camera. Simply amazing.
The Gender Crash crowd is one that doesn’t have much intersection with my social circles, so I don’t generally recognize too many people there. One person that walked up while I was playing with the the camera was–Aperna! What a crazy coincidence that I should run into both of them on the same day!
Inside, I wasn’t too surprised to find Rachel. I sat next to her and she seemed happy enough to have me talk with her all evening. Also there, as a fun surprise to me, was Genevieve, whom I knew from Tiffany Club! She had a guitar and did a song later in the evening. Gender Crash was fun. It was good to be back.
Gender Crash was over early enough that I made it back to Stacy’s before she left for work. I just needed to grab a few things for the night. I was trying to do that fairly quicly, but Stacy had no time to spare. “You ready?” she asked. We walked out together, just to walk for that one block before we headed different directions. It was a little bit silly. A little bit silly because half way to the office, I realized I had forgotten to pack a sheet. Shoot. I didn’t have the energy to walk back and get it, but no way could I sleep on the bunk in the women’s room without it. I decided to sleep on the floor in my office. Yes, the floor is hard, but there are some advantages. For one, I can control the temperature in the room. For two, the cleaning crew comes much later and I get more sleep. I did, in fact, sleep very well.